One Step at a Time: How I Exercise With Myasthenia Gravis

As someone living with myasthenia gravis (MG), let me tell you, sticking to an exercise routine can be a real challenge. MG is a neuromuscular disorder that messes with your muscle strength and endurance, making physical activity a unique challenge. Some days, I can easily tackle a moderate-intensity workout, while on other days, even getting out of bed can be a struggle.

Since my recent flare a few months ago, exercise other than a short walk is out of the question. MG can be highly unpredictable, causing significant variations in what one is capable of from month to month.

When my condition was well managed, the intensity and type of exercise I could do would depend on how I was feeling on any given day. It was important for me to listen to my body and avoid overexertion, as that can worsen symptoms. I found that low-impact exercises like yoga and Pilates were great for strengthening and stretching my muscles without putting too much strain on them. Yin yoga and qi gong are still exercises I can do in moderation, and they’re my favorites. They combine relaxation with physical exercise, providing me with both mental and physical health benefits.

When I have more energy, I incorporate cardio into my workout routine, usually on the treadmill or with light weights to help build my strength. I've learned to pace myself during exercise and break up my workouts into shorter, more manageable sessions. Pacing is crucial because overdoing it can result in fatigue the following day. It's also advisable to keep the intensity low when the body is already stressed. Engaging in high-intensity physical activity puts a significant amount of stress on my muscles, joints, and other parts of my body, leading to an increase in inflammation. While some stress on my body is necessary to trigger the adaptation and growth of the muscles, excessive or prolonged stress can be harmful.

I've also learned that "underdoing" it can be just as problematic as overdoing it. If I spend a day in bed or barely moving, I feel weaker, so finding a balance is essential. Apart from gym work, I have an energetic 3-year-old retriever who motivates me to go for walks and explore nature as often as possible. Watching my dog run and play reminds me to take joy in the simple pleasures of life.

Living with MG has taught me to be kind to my body and listen to it. Exercise may seem daunting, but it's possible with patience and adaptation. Celebrating small wins, even if it's just a short walk around the block, is crucial. Finding what works for you and taking things at your pace are essential in managing MG.

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Misha Grayson Coleman was diagnosed with myasthenia gravis, a rare neuromuscular disease, in 2021. Despite this diagnosis and her life being turned upside down, she is determined to live her life to the fullest and to spread awareness about the condition to help others who may be going through similar struggles. Not only is she a dog mom, but she's also a fashion and travel influencer as well as a health enthusiast. She dedicates her time to researching, learning, and sharing the best ways she's found to manage her condition with the goal of reaching remission. Connect with her here.

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